Our Story, So Far

c.gifI’m just a 32-year-old girl named Jen who very badly wants to be a mama with my lovely hubby, who just happens to have osteogenesis imperfecta – the rare genetic disorder better known as brittle bone disease affecting 20,000 to 50,000 people in the United States.

We’re not known to be infertile but because of his disease and the 50-50 odds of passing it on, we’re going the IVF with PGD route because he’s got a “mild” case – only 18 major fractures during his adolescence!

In August/September 2007, our first IVF cycle (and our first time ever trying to conceive – none of that DIY business) yielded 17 eggs and 13 good embryos, seven of which were affected with OI. Thus, two were transferred and three “fabu” embryos were frozen.

But my body didn’t like it one bit.

Okay, that’s a lie. My cervix didn’t like the catheder used during transfer. My uterus passed the pregnancy’s responsibility to my left tube.

But my body, it tried very hard to sustain the nonviable pregnancy.

So after a shot of methotrexate in each hip,  we’re still waiting to be parents.

And the wait continued after our first FET in January 2008. It was deemed a success by all accounts – including the ever-painful seaweed stick up my hoo-hah (better known as a lamineria).

That was, until the ultrasound at 6w5d revealed an empty gestational sac. Insert lots of tears, lots of questions and an RE just as befuddled about the horrible luck. Three days later, I started to miscarry, which left us hoping that the third time is the charm.

And crazily enough, it seems that three is our lucky number. In May, we started up our second fresh IVF cycle on a lower med protocol in an effort to keep me from hyper stimulating and, hopefully, adding a couple more eggs to the basket for our PGD efforts.

June 3, 2008 we got the great news, my beta was a fabu 282. It nearly doubled two days later and at our first ultrasound a little blob with a perfect flickering heartbeat was seen!

Now we’re crossing our fingers – February’s due date can’t come soon enough!


5 Responses to “Our Story, So Far”

  1. Duffy Says:

    I am just starting the IVF journey with CCRM….I am adding your blog to my list and hoping that your heart’s dream is fulfilled very soon. I am so very sorry to hear of your losses. My heart goes out to you.

  2. Jennifer Says:

    Good luck! I am crossing my fingers for you. I am a 31 year old healthy female, in a similar situation- but about a year behind you in getting this going. My husband is 29 and has OI- we too have decided to do PDG and IVF to avoid passing the disease onto our children. We are both I haven’t spoken to anyone else trying this. We are now at the step of having the probes made. I am not sure what to expect- but hope in the next year we have made some progress. I try not to get my hopes up. If you have any advice for me I would appreciate it!

  3. Weebles Wobblog - Getting (mile) high with ColoBloggers Says:

    […] blogs about unexplained IF at Freezer Buns Nancy blogs about secondary IF at Infertile and SarcasticJen blogs about IVF with PGD at Mama Wannabe Meg blogs about building a family after pregnancy loss at […]

  4. Getting (mile) high with ColoBloggers | Weebles Wobblog Says:

    […] blogs about unexplained IF at Freezer Buns Nancy blogs about secondary IF at Infertile and SarcasticJen blogs about IVF with PGD at Mama Wannabe Meg blogs about building a family after pregnancy loss at […]

  5. MCK Says:

    So glad I found this blog! I am 29 (30 next month) and I am the one with OI. My husband is perfectly healthy, other than a few extra pounds. We are in the early stages of talking to doctors and doing some genetic testing on me to develop the test for our fetus. I’m curious what caused you to chose to do IVF/PGD instead of trying naturally and having a 10 week test on the fetus? I’ve struggled with these choices for a long time and now that we are so close to actually trying I think we’ve made a good choice for us but of course I won’t really know that until I’m faced with it and a possibly very unpleasant option.

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